Desajustados no mundo: mudança cultural através de práticas culturais aleijadas
Desajustados no mundo: mudança cultural através de práticas culturais aleijadas
DOI:
https://doi.org/10.28998/rm.2023.13.14022Keywords:
Disability arts, Crip cultural practices, COVID-19, World-making, NecropoliticsAbstract
Baseadas na nossa participação em artes S/surdas, deficientes e loucas da América do Norte (Ilha Tartaruga), este artigo apresenta e explora como as “práticas culturais aleijadas”, práticas culturais nascidas da cultura da deficiência que centralizam as pessoas com deficiência e nossa política, contribuem para atos de construção de mundos. Começamos com uma descrição de como os primeiros dias da pandemia serviram como uma disrupção cultural que nos desafiou a pensar sobre como nos reunimos nas artes e na cultura. Em seguida, oferecemos uma breve revisão de como os estudos sobre deficiência e o ativismo sobre deficiência criticam a normalidade. Considerando como as organizações artísticas e culturais responderam às medidas de saúde pública da Covid-19, argumentamos que o setor falhou amplamente em buscar a “sabedoria aleijada” (Lakshmi Piepzna-Samarasinha, 2016), impedindo a transformação de práticas pandêmicas temporárias em práticas culturais aleijadas sustentáveis. Terminamos com alguns exemplos-chave que demonstram como as práticas culturais aleijadas gesticulam em direção a mundos aleijados necessários para a sobrevivência das pessoas com deficiência.
Downloads
References
ARCH Disability Law Centre. Open letter: Ontario’s triage COVID-19 protocol. ARCH Disability Law Centre. May 15, 2020. Available at: https://archdisabilitylaw.ca/resource/open-letter-ontario-covid-19-triage-protocol/. Accessed in: August 2022.
BAUMAN, Zygmunt. Community: Seeking safety in an insecure world. Hoboken: John Wiley & Sons, 2013.
BERNE, Patty. Disability justice: A working draft. Sins Invalid: An unashamed claim to beauty in the face of invisibility. June 10, 2015. Available at: https://www.sinsinvalid.org/blog/disability-justice-a-working-draft-by-patty-berne. Accessed in: August 2022.
BRAND, Dionne. On narrative, reckoning and the calculus of living and dying. Toronto Star. July 4, 2020. P. 4. Available at: https://www.thestar.com/entertainment/books/2020/07/04/dionne-brand-on-narrative-reckoning-and-the-calculus-of-living-and-dying.html. Accessed in: August 2022.
BRAUN, Virginia; CLARKE, Victoria. One size fits all? What counts as quality practice in (reflexive) thematic analysis? Qualitative research in psychology, v. 18, n. 3, 2020.
CALDWELL, Melissa L. Why people with disabilities are at greater risk of going hungry – especially during a pandemic. The Conversation. August 16, 2021. Available at: https://theconversation.com/why-people-with-disabilities-are-at-greater-risk-of-going-hungry-especially-during-a-pandemic-156804. Accessed in: October 2022.
CAMPBELL, Fiona Kumari. Refusing able(ness): A preliminary conversation about ableism. M/C Journal, v. 11, n. 3, 2008.
CHANDLER, Eliza; IGNAGNI, Esther; COLLINS, Kimberlee. Communicating access, accessing communication (Dispatch). Studies in Social Justice, v. 15, n. 2, p. 230–238, 2021.
COLLINS, Kimberlee; JONES, Chelsea; RICE, Carla. Keeping relaxed performance vital: Affective pedagogy for accessing the arts. Journal of Literary & Cultural Disability Studies, v. 16, n. 2, accepted 2022.
CRITICAL DESIGN LAB. Remote access: A crip nightlife gathering. Available at: https://www.mapping-access.com/remote-access. Accessed in: July 2022.
AGILO, Jessa; FISHER, Lindsay; HAMRAIE, Aimi; LIN, Yo-Yo. Crip culture and digital experiments. Critical Distance Centre for Curators PDA Series. September 28, 2020. Online.
DAVIS, Lennard J. The disability studies reader. 5th ed. New York: Routledge, 2017.
DYSART, Taylor. The Ottawa trucker convoy is rooted in Canada’s settler colonial history. The Washington Post. February 11, 2022l Available at: https://www.washingtonpost.com/outlook/2022/02/11/ottawa-trucker-convoy-is-rootedcanadas-settler-colonial-history/. Accessed in: July 2022.
ELLCESSOR, Elizabeth. In case of emergency: How technologies mediate crisis and normalize inequality. New York: New York University Press, 2022.
FOUCAULT, Michel. The history of sexuality. New York: Pantheon Books, 1978.
GARLAND-THOMSON, Rosemarie. Misfits: A feminist materialist disability concept. Hypatia, v. 23, n. 3, p. 591–609, 2011.
GREEN, Kimberly Maul. Accessibility, Relaxed Performances, and Tourrettesheros’ Not I by Samuel Beckett. BRIG Blog. November 21, 2019. Available at: https://www.bricartsmedia.org/blog/accessibility-relaxed-performances-and-touretteshero%E2%80%99s-not-i-samuel-beckett. Accessed in: June 2022.
GOTKIN, Kevin; HICKMAN, Louise; HAMRAIE, Aimi. Remote access: Crip nightlife participation guide. Available at: bit.ly/RemoteAccessPartyGuide. Accessed in: June 2022.
HAMRAIE, Aimi. Building access: Universal design and the politics of disability. Minnesota: University of Minnesota Press, 2017.
HAMRAIE, Aimi; FRITSCH, Kelly. Crip technoscience manifesto. Catalyst: Feminism, theory, technoscience, v. 5, n. 1, p. 1–33, 2019.
HARTMAN, Saidiya. The end of white supremacy: An American romance. Bomb Magazine, 152. June 5, 2020. Available at: https://bombmagazine.org/articles/the-end-of-white-supremacy-an-american-romance/. Accessed in: August 2022.
HEDDLES, Claire. Dialogue: Disability Justice in the Time of COVID-19. WUOT. August 5, 2020. Available at: https://www.wuot.org/post/dialogue-disability-justice-time-covid-19. Accessed in: April 2022.
HENDREN, Sara. What can a body do? How we meet the built world. New York: Riverhead Books, 2020.
IRWIN, Rita; SPRINGGAY, Stephanie. A/r/tography as practice-based research. In: SPRINGGAY, Stephanie; IRWIN, Rita; LEGGO, Carl; GOUZOUASIS, Peter (eds). Being with a/r/tography. Leiden: Brill Publishers, 2008. p. xix-xxxiii.
JACKSON, Alecia Youngblood; MAZZEI, Lisa. Thinking with theory in qualitative research: Viewing data across multiple perspectives. Routledge, 2011.
JIMMY, Elwood; CHANDLER, Eliza. Temporality and Acces(sen)sibility: A push for a different relationship with time. El Alto. March 1, 2021. Available at: https://elalto.wearethebritishcouncil.org/en/interview-elwood-eliza-en/. Accessed in: March 2022.
JIMMY, Elwood. Access(sens)ibility. Translation roundtable. September 17, 2020. Available at: https://www.artseverywhere.ca/translation/#jimmy. Accessed in: March 2022.
JOHNSON, Merri Lisa; McRUER, Robert. Cripistemologies: Introduction. Journal of Literary & Cultural Disability Studies, v. 8, n. 2, p. 127–147, 2014.
JONES, Chelsea Temple; COLLINS, Kimberlee; RICE, Carla. Staging accessibility: Collective stories of relaxed performance. Research in Drama Education: The Journal of Applied Theatre and Performance, 2021.
JONES, Chelsea Temple; RICE, Carla; CHANDLER, Eliza; LAM, Margaret; LEE, Karen Kiwon. Toward TechnoAccess: A narrative literature review of disabled and aging experiences of using technology to access the arts. Technology and Society, n. 65, 2021a.
JONES, Chelsea; COLLINS, Kim; RICE, Carla; DION, Susan. Relaxed Performance: Exploring University-based Training Across Fashion, Theatre and Choir. A report prepared for the British Council Canada, Toronto, Ontario, p. 1–60, 2021b.
JONES, Chelsea; COLLINS, Kim; RICE, Carla. Relaxed Performance pedagogy: Teaching and learning beyond diversity agendas. Critical Studies in Education, under review.
SHANNON, David. Neuroqueer(ing) noise: Beyond ‘mere inclusion’ in a neurodiverse early childhood classroom. Canadian Journal of Disability Studies, v. 9, n. 5, p. 489–514, 2020.
KAFER, Alison. Feminist, queer, crip. Bloomington: Indiana University Press, 2013.
KELLY, Evadne; BOYE, Seike; RICE, Carla. Eugenics and epistemologies of ignorance in Ontario. In: PUNZI, Elisabeth; STEELE, Linda (Eds.) Psychiatric and Disability Institutions after Deinstitutionalisation: Memory, Sites of Conscience, and Social Justice. Vancouver: University of British Columbia Press, in press.
KELLY, Evadne; MANNING, Dolleen; BOYE, Seike; RICE, Carla; OWEN, Dawn; SHONEFISH, Sky; STONEFISH, Mona. Elements of a counter-exhibition: Excavating and countering a Canadian history and legacy of eugenics. Journal for the History of Behavioural Sciences, v. 57, n. 1, p. 12–33, 2021.
KLEIN, Gabriele; NOETH, Sandra. Emerging bodies: The performance of worldmaking in dance and choreography. Nova York: Columbia University Press, 2011.
KOVESI, Caroline. "’an't Nobody Even Spread Their Wings H”re": Thinking disability alongside environmental racism, collectively acquired impairments, and injustice in Flint, Michigan. Toronto: York University, 2019.
LAMARRE, Andrea; RICE, Carla; BESSE, Kayla. Letting bodies be bodies: Exploring Relaxed Performance in the Canadian performance landscape. Studies in Social Justice, v. 15, n. 2, p. 184–208, 2021.
LAMARRE, Andrea; RICE, Carla; BESSE, Kayla. Relaxed Performance: A Snapshot. Summary of research on Relaxed Performance prepared for the British Council Canada, Toronto, Ontario, p. 1–16, 2020.
LAMARRE, Andrea; RICE, Carla; BESSE, Kayla. Relaxed Performance: Exploring Accessibility in the Canadian Theatre Landscape. A report prepared for the British Council Canada, Toronto, Ontario, p. 1–84, 2019.
LAKSHMI PIEPZNA-SAMARASINHA, Leah. The Future Is Disabled: Prophecies, Love Notes and Mourning Songs. Vancouver: Arsenal Pulp Press, 2022.
LAKSHMI PIEPZNA-SAMARASINHA, Leah. Sins Invaid's ‘Birthing, Dying, Becoming Crip Wisdom’ features crip art, activism, love & liberation. Autostraddle, 2016. Available at: https://www.autostraddle.com/sins-invalids-birthing-dying-becoming-crip-wisdom-features-crip-art-activism-love-and-liberation-354749/. Accessed in: June 2022.
LAM, Margaret; RICE, Carla; EL KADI, Rana; CHANDLER, Eliza; FISHER, Lindsay. Accessing the Arts Community Report. April 16, 2021. Available at: https://creativeusers.net/static/d6bb275f255492d4917a74ab93707ddc/2021-Final-ATA-Report.pdf. Accessed in: June 2022.
LENNARD, Natasha. Can the left learn from Canada’s “Freedom Convoy”? The Intercept. February 16, 2022. Available at: https://theintercept.com/2022/02/16/canada-protests-freedom-convoy-ottawa/. Accessed in: April 2022.
LIN, Yo-Yo; GOTKIN, Kevin; BROWN, Pelenakeke. Vital Capacities bios. Available at: https://vitalcapacities.com/presents/03/bio.html. Accessed in: October 2021.
LUNSKY, Yona. People with disabilities put at risk by COVID-19 triage and vaccination priorities. February 15, 2021. Available at: https://theconversation.com/people-with-disabilities-put-at-risk-by-covid-19-triage-and-vaccine-priorities-154741. Accessed in: February 2022.
MICHALKO, Rod; TITCHKOSKY, Tanya. Rethinking normalcy: A disability studies reader. Toronto: Canadian Scholars' Press, 2009.
McRUER, Robert. Disability art on lockdown with Robert McRuer. School of Disability Studies, Toronto Metropolitan University (YouTube). 2021. Available at: https://www.youtube.com/watch?v=wcFYRy8fnBE. Accessed: June 2022.
MINGUS, Mia. Changing the framework: Disability justice. Leaving Evidence. February 12, 2011. Available at: https://leavingevidence.wordpress.com/2011/02/12/changing-the-framework-disability-justice/. Accessed in: June 2022.
MINGUS, Mia. You are not entitled to our disabled deaths: COVID, abled supremacy, and interdependency. Leaving Evidence. January 16, 2020. Available at: https://leavingevidence.wordpress.com/?s=covid+19. Accessed in: July 2023.
MUSSELL, Linda. The end of the ‘freedom convoy’ in Ottawa: Why rejoicing when occupiers get arrested isn’t the answer. The Conversation. February 18, 2022. Available at: https://theconversation.com/the-end-of-the-freedom-convoy-in-ottawa-why-rejoicing-when-occupiers-get-arrested-isnt-the-answer-177498. Accessed in: April 2022.
PAPALIA, Carmen. An accessibility manifesto for the arts. Canadian Art. January 2, 2018. Available at: https://canadianart.ca/essays/access-revived/. Accessed in: April 2022.
RANCIERE, Jacques. The politics of aesthetics. London: Bloomsbury Publishing, 2013.
RICE, Carla; RILEY, Sarah; LAMARRE, Andrea; BAILEY, Alysse. What a body can do: Rethinking body functionality through a feminist materialist disability lens. Body Image, n. 38, p. 95–105, 2021a.
RICE, Carla; JONES, Chelsea Temple; WATKIN, Jessica; BESSE, Kayla. Relaxed Performance: An ethnography of pedagogy in praxis. Critical Stages/Scènes critiques, n. 22, p. 1–19, 2021b.
RICE, Carla; CHANDLER, Eliza; HARRISON, Elisabeth; CROFT, Lacey. Access after COVID: How disability culture can transform life and work. The Monitor. Ottawa: Canadian Centre for Policy Alternatives, 2021c.
RICE, Carla; DION, Susan; CHANDLER, Eliza. Decolonizing disability and activist arts. Disability Studies Quarterly, v. 41, n. 2, 2021.
RICE, Carla; BAILEY, Alysse; COOK, Katie. Mobilizing interference as methodology and metaphor in disability arts inquiry. Qualitative Inquiry, p. 1–13, 2021e. [First Published 21 Sep 2021].
RICE, Carla; JONES, Chelsea Temple; MÜNDEL, Ingrid. Slow story-making in urgent times. Cultural Studies, <=> Critical Methodologies, v. 22, n. 3, p. 245–254, 2022.
RICE, Carla; TEMPLE JONES, Chelsea; MÜNDEL, Ingrid; DOUGLAS, Patty; FOWLIE, Hannah; FRIEDMAN, May; HARRISON, Elisabeth; HUNTER, Devon; KELLY, Evadne; KRITH, Madelaine; MERRAI, Sonia. Stretching Our Stories (SOS): Digital worldmaking in troubled times. Public Journal, 2022.
RICE, Carla; CHANDLER, Eliza; HARRISON, Elisabeth; FERRARI, Manuela; LIDDIARD, Kirsty. Project Re•Vision: Disability at the edges of representation. Disability & Society, v. 30, n. 4, p. 513–527, 2015.
SIMPSON, Leanne Betasamosake. As we have always done: Indigenous freedom through radical resistance. Minneapolis: U of Minnesota Press, 2017.
SWAIN, Gloria. The healing power of art in intergenerational trauma. Canadian Journal of Disability Studies, 2019.
VIZENOR, Gerald. Aesthetics of survivance: Literary theory and practice. In: VIZENOR, Gerald. Survivance: Narratives of native presence. University of Nebraska Press, 2008. p. 2–23.
WALENSKY, Rochelle. CDC director responds to criticisms on COVID-19 guidance. Good Morning America. January 10, 2022. Available at: https://www.goodmorningamerica.com/news/video/cdc-director-responds-criticisms-covid-19-guidance-82131389. Accessed in: April 2022.
WILLIAMSON, Bess. Accessible America: A history of disability and design. New York: New York University Press, 2019.
